The Jett Foundation Hosts Its 12th Annual Golf Classic on June 4th at Pinehills

The 2014 Jett Golf Classic will take place on Wednesday, June 4, 2014 at Pinehills Golf Club in Plymouth, MA. The Jett Golf Classic is an annual celebration of hope, friendship and great golf, all to support children with Duchenne muscular Dystrophy (Duchenne).  This is Jett Foundation’s largest fundraiser of the year, drawing more than 200 golfers and dinner guests to the Pinehills two spectacular premier championship courses and clubhouse for a day of golf, food, fundraising, and fabulous prizes. Dinner will be prepared by East Bay Grille of Plymouth. The day begins with registration at 9:30 am, a Shotgun Start at 11:00 am, a Cocktail Reception at 4:00pm with Silent Auction, and Dinner & Live Auction beginning at 5:00pm. Individual golfers are $225 per person and includes greens fees with cart, welcome bag, lunch, reception & dinner. Hole sponsors are $200 (name & logo on course hole sign). For more details, email golf@jettfoundation.org or call (781) 585-5566. http://jettfoundation.org/2014-jett-golf-classic/.

Since 2001, the Jett Foundation, located in Kingston, MA, has worked to find treatments and a cure for Duchenne muscular dystrophy (DMD) while improving the lives of those affected by DMD. Over the past decade, the Jett Foundation has raised nearly 2 million dollars for Duchenne research. The Foundation currently funds the Jett Program for Pediatric Neuromuscular Disorders (JPPND) at Mass General Hospital for Children (MGCFC). Additionally, the foundation provides advocacy services for families affected by Duchenne. Duchenne muscular dystrophy occurs when the body lacks dystrophin. Duchenne is the #1 genetic killer of children with a 100 percent fatality rate. A child of five diagnosed with Duchenne experiences loss of muscle strength leading to wheelchair confinement by adolescence and a shortened life assisted by ventilators. The progressive deterioration of muscle strength leads to death in the late teens or early twenties. Approximately 24,000 children in the United States and 350,000 worldwide live with the disease that randomly occurs in 1 out of every 3,500 births of boys. Duchenne families, including the McSherry and McNary families of Pembroke, are faced with the prospect of taking their sons home to die or advocating for children on Capitol Hill, in medical circles, via social media and in the media. Families across the country have recently made progress in their Race to Yes campaign by petitioning the White House to encourage the FDA to consider accelerated approval for the first approved Duchenne drug treatment. The FDA is charged with “advancing the public health by helping to speed product innovations” – and local Duchenne families are working tirelessly to get first-of-its-kind treatment for Duchenne and other rare diseases.


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